Sat. Sept. 8th.

Yesterday I was pretty symptom free and was able to see Luke. I got to hold him for a really long time, which was wonderful (I missed him so much!). We cuddled up skin to skin, it was excellent! He looks really good and especially without the CPAP on, I could see his whole face and head, which are beautiful! He's a handsome little man. He also had on his first outfit, the nurse that watched him in the night put a little one piece outfit on him, he looked adorable.
He also had a special visitor, Fr. Pat McNamee, he came to see Luke for the first time. We talked about where we started this journey and where we are today, following Luke's progress. He received a special prayer and blessing from Fr. Pat.

Today, Jeremy, Bryan and I visited Luke. Bryan stared at Luke and was interested, but pushing buttons was a little more interesting than Luke. Bryan enjoyed the purple glove the nurse gave him and we made purple glove puppets. A little entertainment. I changed Luke's diaper and checked his temp. Then Jeremy held him (skin to skin) and Luke just snuggled right in. Bryan and I went for a walk while they took a little nap together. Bryan blew Luke kisses when it was time to leave.

They are holding off on giving Luke food still. The doctors have decided they will do the upper GI test on Monday. It's another dye test. They will follow the dye as he digests it to see how he moves food through, which will help them see where the hang up is, if there is one. If things look good, they will start up food again.

I recently had someone ask, "how do you handle this rough journey with your baby". My answer, "I hold His hand and He guides me through each day." We are never alone and we are never given more than we can handle. We just do.