Friday Oct. 26th

Luke is showing us that he doesn't like change in a big way. Last night his breathing became too labored and his blood gas levels were elevated at a scary level. Unfortunately they had to put him on the ventilator to stabilize his breathing. They also needed to do another transfusion to help give him a boost to get through this. They started up the diuretics again to help take some of the moisture off his lungs that was adding to his difficulty in breathing. It's been a rough day, Luke doesn't like the ventilator and reacts to each time they need to suction him or move him or take his blood. He is a tad more stable this evening, but still is making us nervous. There is also no sign so far of any infection lurking about in him, thank goodness.
I didn't hesitate voicing my opinion to Luke's doctors today about what I had been seeing and they continued to push him anyway. Moving forward they will listen to us closer, which we do respect Luke's fine doctors immensely, but part of his care is also what the parents see going on and that can't be set aside.
I've been asked a lot today how we're holding up and I have to honestly say, it's tough, incredibly tough. Seeing an innocent baby struggle is hard, but seeing your own baby struggle is the hardest. It's each of our hearts laying in that little bed struggling along with his. We never fall short on hope though and we owe it to our faith that is keeping us glued together.
Luke needs those prayers that you all diligently provide. Jeremy and I can't thank you enough for them.
Melinda