These two pictures were from some friends that visited last week and took these great shots. After several days of Luke being uncomfortable and hard to settle, finally today he was more like his easy going self. He rested better and just seemed more content. This is most likely because of the steroid he's been on. It can cause this. Now he's being weened off of the steroid, which it has helped, his lungs have been able to expand better with the inflammation down, they do look really cloudy from scar tissue, but better expansion does help. He's slowly being weened from the Nitric Oxide therapy, which can also give him a headache and make him not feel good, so reducing that a bit is most likely helping too. His latest Ecocardiogram follow-up showed the pressures down in his heart again, which means that is working too. He'll have a repeat Eco next week, it's kind of a waiting game right now, just waiting to see how he does coming off of these two therapies used.
His nurses brought in a "sky show", it reflects images on the ceiling in a circle. Luke enjoys watching the images go around. He's still very interactive and social. He loves being held and likes to hold hands. He's the grandfather of the NICU being the longest one they have there right now. He received his first Christmas gift this week, a pair of puppy shoes from one of his nurses. Very cute and special. His room has had some additions this week too, one being a picture board of Luke pictures and he now has a bouncy seat to sit in too. Still his swing and sitting up in the boppy pillow are his favorites.
One very tough thing for us this week, is that Jeremy has been sick with a cold. He hasn't seen Luke much this week and he's very anxious to get well, so he can be with him very soon. Tons of prayers are going out for Luke, which just amazes Jeremy and I, we are extremely grateful. Thank you,
Melinda
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