Luke continues to do well. The Sildenafil initially seemed to make him irritable, but today Luke seemed more comfortable and he was able to rest well. I sat with him last night for several hours, just letting him lay on me and sleep. He is weening off of the Nitric Oxide easily. They will continue to drop it down over the next few days, possibly being off it by the weekend. They can't drop it instantly because once on it, the lungs depend on it, so they must slowly take him off of it. The lung specialist checks in on him 3 times a week and he'll have a follow-up ECO on Friday with the Cardioligist.
He continues to eat very well and loves to stare and study faces. I love looking into his eyes.
We have very much to be thankful for this Thanksgiving and one big one is how our whole family has endured this challenging time with us, but also for all your prayers and support. We are thankful for each of you. We most importantly are thankful for God's love, His grace gives us strength when we are challenged and weak. He is the one wrapping His arms around Luke and our family. Without His love I wouldn't realize the full meaning of what life is and how important each life is, from the tiniest to the biggest, to the most young to the very old. God's love is abundant.
Melinda
Where am I, Right Now?
9 years ago
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