Luke is off the Nitric Oxide and doing fine without it, which is good. He'll remain on the Sildenafil for some time. He will have his follow-up ECO on Monday and Jeremy and I along with Luke's doctors will all meet for a conference on Friday to go over everything.
Thanksgiving was nice, especially being surrounded by family, I spent the earlier part of the day with Luke, so I could focus on being with family the rest of the day. However, how nice as Thanksgiving was, I kept feeling as if somebody was missing. It's a very uncomfortable/odd feeling. Something I can't describe.
One special thing to mention about Luke's Thanksgiving was his nurse made him a Thanksgiving card with pictures of him with cute sayings. It is just adorable.
Friday Bryan and I spent time up with Luke, Bryan gave him plenty of hugs and kisses, very precious.
Today Luke had a special visitor, a harpist came and played for him. Beautiful harp music right next to him (and me while I held him). Apparently Music Rx has volunteer harpist to play for patients. Luke (and I) loved it. It was the nicest and prettiest moment. I found out that they will come back once or twice a week to play for him and they will call and tell us beforehand, so we can come and enjoy it with Luke too.
I think Luke is gaining well because he feels heavier and those little cheeks are getting a little chubbier. I'll post his latest statistics on Monday.
Melinda
Where am I, Right Now?
9 years ago
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