Mon. Nov. 26th 17 weeks

Luke had great growth last week, his latest statistics are:
8lbs 8.5oz
20.5" length

This is great growth for his lungs too, which are sounding a little better. He had his follow-up Echo cardiogram today and his pulmonary pressures look a little better. Not huge progress, but they do look a little better. His Cardiologist is increasing his Sildenafil to see if that will make a difference. Luke will have a repeat test next week to see how it helped. We're planning on having a care conference Friday with Luke's doctors, specialist and his primary nurses. This will help answer questions that we have and discuss what's next for Luke and the best scenario for getting him home. It's possible he'll go home on the high flow nasal cannula. It will be good to go over everything.

Luke looks very good, slightly grumpy on the Sildenafil, but he just looks very good that you wouldn't think that he has anything big going on in the inside. The physical therapist stopped by and offered some pointers on helping a few of his muscles out. In particular the muscles that work around his chest area to help his breathing. It's amazing what little maneuvers can be done to help his muscles out so easily.

Today I brought a special relic from Saint Therese to his bedside and placed it on his chest, praying for those lungs and heart to get better. A good friend is letting us borrow this precious relic, it was wonderful praying with him and having nurse Barb today chime in. I get all chocked up during these moments, the love for this little boy is immense, indescribable. We also received a special note in the mail recently. A Mass will be said for Luke and our family on Sunday Dec. 2nd by Fr. Peter Fernandes at his church in Chicago. He also has continual prayer intentions at Mass with Fr. Tom at St. Francis in Sherwood. These are just a few of the very special prayers that are going out for our Luke. We continue to feel blessed by all your love.
Melinda